Er zijn 21 resultaten gevonden

door agamarcel
vr okt 24, 2008 10:19 pm
Forum: Kids & Achondroplasia
Onderwerp: Spine surgery
Reacties: -1
Weergaves: 1800

Spine surgery

Has any child here needed a spine surgery in order to avoid nerv damage?
The doctors here in Sweden haven't done this operation on someone younger than 6 years and a friend of mine's daughter who is almost 4 years old needs this surgery pretty badly.
door agamarcel
wo mei 09, 2007 7:26 pm
Forum: Kids & Achondroplasia
Onderwerp: Basje - videos
Reacties: -1
Weergaves: 1851

thank you Wendy :) Basje is doing fine, he's really developed a lot the last couple of months. He starts talking (a mixture of dutch and polish) and is really "busy" all the time :) On the other hand, he's had 5 earinflammations since the middle of February so together with his ear-doctor ...
door agamarcel
do mei 03, 2007 5:45 pm
Forum: Kids & Achondroplasia
Onderwerp: Basje - videos
Reacties: -1
Weergaves: 1851

thank you!

ps. Wendy, can you please delete the spam here?
door agamarcel
wo mar 21, 2007 9:37 pm
Forum: Kids & Achondroplasia
Onderwerp: Basje - videos
Reacties: -1
Weergaves: 1851

Basje - videos

*changed*
door agamarcel
ma okt 16, 2006 9:54 pm
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

Hello everyone! thank you for all your compliments. wendy, the address is http://www.akondroplasi.forum24.se but you must be registered and write something about you/your child if you want to read the messages forum. It mightbe easy för you to understand written swedish - Marcel says it's resembles ...
door agamarcel
vr okt 13, 2006 9:27 pm
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

thank you! I couldn't reply earlier because the server here was full. Sebastian is doing very well (still). He can now walk with a little wagon and also when he holds onto th efurniture and walls at home. And he started saying a few Dutch words: "hebben", "handje" and "lamp&...
door agamarcel
ma jun 05, 2006 10:10 pm
Forum: Kids & Achondroplasia
Onderwerp: crawling?
Reacties: -1
Weergaves: 1218

crawling?

Hi! I wonder how many children on thi sforum could actually crawl? I keep hearing opinions taht kids with achondroplasia can never crawl.For a few weeks now Sebastian has been trying to ...crawl I guess...I wonder if he will be able to get up on his knees and crawl like most of the kids. http://img4...
door agamarcel
zo apr 02, 2006 2:26 pm
Forum: Kids & Achondroplasia
Onderwerp: Basje after his surgery
Reacties: -1
Weergaves: 1039

we came home today - tomorrow we go back for a check up (he lost some weight because all he ate was milk - he is getting his teeth so I think this is a part of a problem plus that his throat is irritated after the intubation). And, if you could see how HAPPY he wasd to be home :D and he ate much bet...
door agamarcel
zo apr 02, 2006 12:38 pm
Forum: Kids & Achondroplasia
Onderwerp: Basje after his surgery
Reacties: -1
Weergaves: 1039

Basje after his surgery

We just got back from the hospital. Everything went very well. The doctors did a good job and according to the neurosurgeon it was just about time to do it - otherwise Sebastian might have gotten serious problems. And already the same evening Basje was happy and smiling. Later tonight I will try to ...
door agamarcel
vr mar 10, 2006 9:07 am
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

Hoi! Just wanted to say that Sebastian can roll from his back to his belly - he is pretty strong in his neck and can hold his head up! :) Even sitting on my lap I don't have to support his head :D And last Tuesday we met the expert in AP who said that Sebastian has good tension in his muscles, that ...
door agamarcel
vr feb 24, 2006 6:19 pm
Forum: Kids & Achondroplasia
Onderwerp: a new chair
Reacties: -1
Weergaves: 1007

a new chair

Sebastian got a special adjustable chair today. Just wanted to show you these pictures
AfbeeldingAfbeelding

more (new) pictures on Basje's website :)
door agamarcel
di nov 08, 2005 9:29 pm
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

Today we had an appointment with the specialist in AP. He examined Sebastian and said that his head looks good -not too big and fontanell looks very nice :) that was indeed the good news. We've been still waiting for the results of the DNA test and Basje is going to have the sleep study done soon. S...
door agamarcel
di okt 25, 2005 11:34 am
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

thanks for the info about the bike, wendy. Is Myrthe enjoying it? :) Yes, we know we need to put Sebastian on his belly to train the muscles in his neck. But let me tell you - he hates it! Poor guy - it seems so difficult for him to lift his little head. But he is pretty strong and can do it quite w...
door agamarcel
vr okt 14, 2005 7:29 am
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

I forgot to log in yesterday..
door agamarcel
zo okt 02, 2005 7:44 pm
Forum: Kids & Achondroplasia
Onderwerp: Sebastian
Reacties: -1
Weergaves: 5152

Hoi Astrid :) You are right about the word "disability". I thought about it myself one time - it's weird to call my son "disabled" and the same reffers to most of the AP people. That was justa story, anyway. One thing I'm most worried about- it's the difficulties with breathing. Honestly, I think so...